Showing posts sorted by relevance for query Praying for a miracle. Sort by date Show all posts
Showing posts sorted by relevance for query Praying for a miracle. Sort by date Show all posts

May 6, 2013

Praying for a Miracle: Updated





I believe in the healing power of prayer and I believe in miracles. I have seen them and watched them happen in my life and the lives of those I love, over and over.

This post is an going blog journal to share that journey and my prayer request for all who read here, or know any of the families involved. I have found that the Internet becomes the primary way for people who don't know addresses, or emails, or how to contact others that they have cared about but lost contact with over the years to share in the lives and the loss of those that we love.

April 2026:  

This update on my long term prayer requests blog post is dedicated to those who care about others and work with their hearts and hands to help others.  





Updated July 2022:

My dear, dear friend, Patti Ball's son, Kelly Ball of Jefferson and Albany Oregon passed away this month. Kelly's life was forever changed as he simply made the decision to cross a road at Oregon State University in 2012. The crossroad was clearly marked with flashing lights whenever a pedestrian walked across. All it took was one elderly gentleman who should never even been driving in his 90s to not see the marked crosswalk, the flashing lights or Kelly as he was walking across.

In spite of incredibly traumatic brain as well as physical injuries Kelly survived. His survival meant living with brain trauma that not only resulted in his being in a coma but a paraplegic still lovingly cared for by a multitude of caregivers, and a mom, dad, and two sisters who visited him in a private care home for the rest of his young life. 

Please hold him in your hearts and prayers and think seriously about whether you or your loved ones choose to continue to drive in any diminished capacity. Prayers for Kelly Ball and all who loved, cared about, or prayered for him. You were loved and cared about and there are so many who will never forget you.

God Bless you dear Kelly with love and prayers for our dear friends, your family who began their own journey of coping with the next 10 years and now for the rest of their own lives.  Blessings and prayers forever for you and for your family.

Photo of St. Patricks quilt for Kelly's mom, my dear friend Mary Pat Sullivan that I met at  college in 1968. We became great friends since then. Patti is fully Irish. Kelly was adopted from Korea by Patti and her husband a decade later.

Prayers continue for my own beloved daughter below.




May 2019 on:

My daughter, Terin was diagnosed with Breast Cancer Stage 3 HERS2+++ in May of 2019.

This is a cancer that can strike women in their 30s and 40s (even a 19 faces this diagnosis) and is often discovered at a more aggressive and advanced stage than older post-menopausal women. It is also harder to treat due to its fast growing nature and ability to self replicate and return. It is a challenging diagnosis and cancer.

Please pray for a complete and totally effective chemotherapy treatment and remission so she can successfully go into further steps to eradicate all cancer from her system. Thank you.

She began with a 16 to 18 week protocol of 4 chemo drugs given one after the other in one very long day 7 to 8 hour chemo protocol on one super treatment day every three weeks. This continued through December. At the time she began further continued medical procedures.  A mastectomy with a large number of lymph glands removed along with the large tumor that all that intense chemo barely touched. It did kill off a few small satellite tumors. After battling lymphedema with intense swelling and doing her own massage therapies at home she was ready for radiation. Strongest they could do and her with a petite frame they did the metal jacket/blanket to further intensify the radiation.  Every Day for 6 weeks. Then Kadcycla. They hoped she'd tolerate 2 sessions. She forced herself to get through months and months until the harm of chemo destruction or red blood cells prompted a halt to any more. Really really sick from all of this and still going into the cancer care clinic through the Covid-19 pandemic reality of 2020. Now in 2021 she is living day to day through the continuing side effects of all she went through. Prognosis for a disease considered terminal is as hard as you can imagine. She was diagnosed at age 44.

Please please say a prayer! light a candle for this incredible cancer warrior, my own beloved daughter. 


Older Posts, Prayers, Miracles and Blessings for loved ones.

Also:
Please feel free to add your own prayers requests in comment. Prayer warriors flock to this blog with lovely, caring energies even when they may not have a google presence or want to publically comment 

February 8, 2016: 




It is with the deepest of sadness that I let all of the Alaskan friends of my brother and his wife know that my sister in law, Becky, passed away during the night of end stage kidney failure while seeking medical treatment and living in Portland Oregon. Dr. Doug and three children, their spouses and 6 grandchildren survive him and are now even more cherished by Doug.





I remember Becky as she was when she was young. Beautiful, vibrant, with a never ending sense of laughter and joy in all that she held dear. 

Please keep my brother, Doug, and all of their children,their spouses, and grandchildren in your thoughts and prayers. Thank you.

Praying for a Miracle: My Family's Ongoing Journey Through Major Illness and Loss.


Older entries that are my ongoing journal and journey through hopes and prayers, miracles and loss.

Prayers Needed: April 16. 2015


My Sister-in-law, Rebecca (Becky)Savikko of Eagle River, Alaska who has been in end stage kidney disease for the past five years, has been successfully medvac'd from Anchorage, where she has spent over 6 months hospitalized after a severe bacterial infection after surgery infected the implanted rod they had placed in her spine, to Portland Oregon. She is in surgery right now and is expected to be out of by later this afternoon.

Doctors at the Oregon Health Science Center determined that they were willing to attempt a surgical procedure where all infected and now decayed bone would be removed from her spine as well as the infected surgical rod. The hope is that a new rod may be implanted that will allow her to once again be able to sit up on her own.

Please pray that she will not only survive surgery in her extremely weakened conditon but that her surgical team can remove the decayed bone from her spine, successfully remove the infected rod that was implanted almost 7 months ago, and hopefully re-implant a new one and keep it and her from any more infections at the surgical site.



Her husband, my brother, Doug, who battled severe infections of his own which resulted in almost non-stop brain seizures in 2012 and whom, all four of us, his siblings rushed to be by his side at Anchorages, Providence Hospital, as were told he was expected to die. He not only lived but was medevaced to Seattle's Harborview Hospital and after being hospitalized in four hospitals and three states, with me following him and being by his bedside and talking non stop to him, successfully came out of his coma and was able to return home to Alaska in May of 2013.


 

He had his miracle of miracles and was able to return to Alaska in May of 2013. He is now in Portland, awaiting his wife's surgery and hopefully a return to any amount of better health that we can get for her. Doug is doing quite well considering the severity of his major health crisis and repeated infections as a result of long term hospitalization. 

 

Update all: Spring of 2015:
My husband, Larry, is almost fully recovered from his stroke of April of last year.





My brother, Doug, of Eagle River, Alaska is now down in Oregon as many members of his Alaskan family now live here and can spend time and give love to his as his wife.





Becky, continues to battle the challenges of needing a last ditch kidney transplant. She has been hospitalized in Anchorage, Alaska for many, many months following surgery for a metal rod in her spine in an attempt to allow her to sit upright again as her bones have continued to deteriorate. Instead, she caught a huge infection, cannot sit upright and therefore is not fit to travel unless her insurance is willing to pay to medavac her south for hospitalization here in Oregon, where she has to meet in person with the transplant committee in order to get back on their list.

My best friend's son, Kelly continues to battle the side effect of his accident where he was crossing a marked and flashing lights pedestrian crosswalk while hit by an elderly man who ignored the lights and the crosswalk and plowed into him creating horrific brain trauma. Please keep him in your prayers and thoughts as he needs them, so.

Updated all: Going into August 2014:

My husband is doing really well since his stroke in April of 2014.

My brother is doing well (but is not as healthy as he needs to be) in spite of three medically induced comas and 6 months of hospitalizations in three states and four hospitals since 2012 on.

My 'oldest' SIL has been removed from the kidney transplant list due failure to maintain protocol visits and form regulations and continues to be in end stage kidney failure.

My 'youngest' SIL is no longer receiving any improvement from any chemotherapy drug for her stage 4 lung cancer. They have tried so many drugs and so many chemo treatments but they simply have exhausted their ability to make a difference. They continue to work on her bucket list.Update: My SIL, Shelley has passed away on August 18, 2014    

Sad News

My best friend's son, is failing to improve and has regressed due to continual seizures, will be on a lifelong feeding tube and in a wheelchair. The elderly man who struck him by driving through the marked and flashing light pedestrian walkway has steadfastly refused to accept responsibility for or give up driving and did not have his license revoked, even now at age 91 after causing severe and lifelong brain injuries to this wheelchair bound young man. He did community service by sitting and watching children play in his church Sunday School while he blames Kelly for being in the wrong place at the wrong time as he was driving through him.

Updated July, 2014 (updated wording since May 2014)

 My husband's stroke on April 16, 2014

He is doing really, really well. Because of the unusual aspects of his stroke, none of the regular protocols or rehabilitative methods were called for and he has resumed regular, daily life. For him that meant back to work by the next Monday, as a small custom and very, very green home builder (www.bilyeugreen.com) here in the Willamette Valley of Oregon.  We talk a lot about a lot of things for his speech therapy and he uses his slightly impaired right side more by practicing with the wonderful gift of a compound bow from our son and son-in-law.  

His last bow was 30 some years old and while the new one looks like medieval weaponry, he got all six arrows into the inner circle thanks to muscle memory and improved technology for bows with a sight and cross hairs! His blood pressure remains excellent, cholesterol level well controlled, and his attitude is wonderful for someone who still has to work and work hard and long for a living instead of being able to retire and let his wife (who has  no viable income since she does everything for free) support him. He is doing great!!

My SIL, Shelley,  survived Stage 4 Lung Cancer for a full 6 months and now more, and celebrated  the birth of her 2nd grandchild. While the first chemo drug is no longer effective, she began a second one, it was no longer effective, and went on to try a third.  She and my brother flew to see all members of her family in late July and visited her grandchildren, including seeing her newest one for the first time. She was a fighter and neither she, nor my brother, ever gave up hope of a miracle.

However, she passed away after about a year of fighting this horrible disease.
Sad News

Old posts, old news but the backstories:

My brother, Doug, and his wife, Rebecca, of Eagle River AK, are still doing as well as can be expected with challenging illnesses and lives. I talk by phone to them weekly but miss being able to see them for a day a week and help out as I did in 2012 and 2013. My brother tells me that he has reached a place of gratitude just to be where they both are..alive and doing better than most people would be doing in their place.

My dear friend's (since 1968!) friend's 33 year old son is working hard to regain the small advances he worked so very hard to gain after being hit by an elderly driver in a marked and flashing light pedestrian crosswalk. He will be on a feeding tube and wheelchair bound for life but his loving family seeks to keep him connected with ipad viewings from their home of his young nephews whom he seems to connect with. He has not maintained his advances due to continued seizures. Please pray for a cessation of any and all seizures so he may have even small progresses instead of losses and returns to his previous state.

It's all a challenge! We all just do the best we can with whatever we've got or what we can gain!

Updated March 30, 2014:

Last week, I was busy hoping and praying that my own brother would revitalize after a third, no wait, fourth visit via paramedics to his home in Eagle River, Alaska as he was once again rushed to the E.R. in Anchorage with pneumonia.My brother got stronger after this now 5th attack of viral/bacterial pneumonia and was allowed to return to home.

Then, the next day, his wife, Rebecca, who suffers from end stage kidney disease, was at one of her tri-weekly dialysis treatments, when she "crashed and burned" as the medical professionals reported. Her blood pressure became so exceedingly hypertensive that she passed out and her lungs filled with fluid. Again, with both viral, and bacterial pneumonia. Now, after many days, she is home, as well.

My other sister-in-law, Shelley,  with advanced stage 4 and metastasized lung cancer has been placed on a maintenance level of chemo, meaning they have done their best, and now let's pray for a holding pattern for as long as that is possible.






Prayers and Blessings ongoing:

And please pray for my dear friend's son, Kelly, who was hit by an elderly driver as he crossed a marked and flashing lights crosswalk, continues to need our prayers for all things, in all ways.

Life is filled with loss, filled with challenges. Life is filled with the color, the sounds, the feelings of love.





As I continue to make and share my prayer flags with as many as I can. I reach as high and as far, as I possibly can and the color of love in my world is sent along the winds of the volumes of love in my heart to everyone, everywhere.



February 6, 2014
My brother Doug, has another case of pneumonia, and was rushed by ambulance from Eagle River to Anchorage. Today, they once again intubated him, and put him into another medically induced coma. We had our major miracle in June of 2012 when he lived after we all rushed to his 'deathbed' in June of 2012. 

I was with him in 4 hospitals and 3 states for the next 6 months. He not only survived, he came out of the coma, eventually off the trach, got his speech and walking back, and his personality. He has had one other severe case of pneumonia since then, but this time is apparently worse, once again. Please keep him in your positive thoughts and prayers, as well as his wife, Becky, who is in end stage kidney failure and has yet to receive a kidney transplant.

Shelley: My SIl, Shelley did fine through her 4th chemo session (see below) and will fly from Juneau to Seattle again on Feb. 20th for the 5th chemo. They will probably switch chemo drugs again in order to trick the disease process into another good outcome instead of building up defenses against the chemo, as is the pattern with chemotherapy.



February 1, 2014: Shelley, Updated

My SIL, Shelley, is watching the Super Bowl today in Seattle after having flown south from Juneau, yesterday. She is a HUGE Seattle Seahawks fan.  She has her 4 th chemo in Seattle, tomorrow. Her tumors have responded to the chemo and shrunk by 50%. This is an excellent but usual temporary prognosis of improvement. The miracle we are praying for is that she can live until the birth of her grandchild in May. 

She knows her disease is terminal and that she is in the final stage of this cancer, and its true you mind and your heart do play games on you and you begin to believe in more than you may be able to have, but this miracle of living longer is a very real possibility...if only the chemo continues to beat its odds of continuing to hold the cancer at bay.  We are praying for Shelley.

My best friends, son who was hit by the car in a crossing pedestrian cross walk had a set back before Christmas. We hold Kelly in our thoughts that he can rise back up from the seizures and regain the use of his right hand and other improvements of recognition and understanding once again.

My other SIL in Eagle River, Alaska is having problems with the fistulas for her end stage kidney dialysis treatments. May a kidney please be found soon.

May my other sister in law in Douglas find relieve from the constant pain from her recent foot surgery. In comparison to our other family members, this is light, but pain is pain especially when we are the one feeling consumed by it! 

Nov. 4, 2013 Updated Dec. 15, 2013 and Dec. 29, 2013

I am asking for prayers for the wife of my youngest brother. Her name is Shelley, and she is traveling from their home in Juneau, Alaska to Seattle, Washington, once again on December 19th. January 8th and 9th for additional chemotherapy. This will be her third chemo since diagnosis.

Shelley has been diagnosed with  Stage 4 Small Cell Squamous Carcinoma.  This is the most common and most serious form of lung cancer that by its designation as Stage 4 has already metastasized, or spread to other organs. It is usually symptom-less until it has already reached this stage.

She is part of the Seattle Cancer Care Alliance, where she has gone through additional testing, and been given choices as to treatments versus palliative care options.They are not giving up, but wanting to do anything that they can to prolong not only her life, but the quality of her life, for as long as she can be given. Shelley has just found out that she will be a 'grandmimi' for the second time.

Her hope and deepest prayer, is that she can survive chemotherapy and that somehow it will work, and will help her to live long enough to see her second grandchild be born in Washington State. She has one other grandchild. a beautiful little granddaughter from another son in Tennessee, that she loves more than life, itself.  But when one is told that they have a terminal and untreatable form of advanced cancer with no chance of a cure, the only hope one has for a miracle must come in the form of living longer ...longer than perhaps even doctors might expect...in order to have this miracle occur.  I pray for this miracle for Shelley.

2014 Update.
It is now mid-January, and my SIL, Shelley just had her third chemotherapy treatment. There is signs of tumor shrinkage, which is in itself, a miracle for this stage of advanced lung cancer. We continue to hope and pray that she can maintain this for additional time with her loved ones.

I have four younger brothers, and this year alone, I have had another brother, his wife, my mother, and one of my best friend's son, all face life or death challenges. This now is the fifth life battle of people that I love and care for in one year. As my oldest of my younger brothers told me, "Michele, we are in our second stage of life now, where more and more of these things happen." This brother is the doctor who battled severe brain inflammation and non-stop brain seizures and was medevac'd from Anchorage to Seattle last June.  I followed him to 3 different states and 4 different hospitals, praying for a miracle and doing everything I do best (non stop talking ;-) to bring him out of the coma and back to us. This brother had his miracle of miracles, and is almost back to full health. His wife, my SIL, Rebecca Savikko, is still awaiting a desperately needed kidney transplant of an O+kidney with high antibody titers.

 My mother passed away on Sept. 8, 2013 but was given time beyond her time after surviving Stage 3b Inflammatory Breast Cancer for 10 years to die after many, many challenging years with Alzheimer's Disease. She was 88 and lived a challenging but good life with a loving husband and five children, many grandchildren and 3 great grandchildren.  I had both my mom and my dad come to live with me in Oregon, after they were given too many delays in Seattle. 

They lived with me for 9 full months and I learned so much from this experience, including taking courses and passing a test to do full cleansing of her chemotherapy heart catheter (wearing a gown, gloves, mask) in our home, once a week.  She not only survived that, but a mastectomy and radiation. This journey was not an easy one but a miracle in so many ways, none the less.

My close friend's (we met in 1968) son, Kelly, is living in a long term care home after suffering severe head trauma after being hit by an elderly man who was driving very fast, right through a marked and flashing lights pedestrian crossing, in April of 2012. Kelly is on  a feeding tube and is trying to learn to swallow so as to be able to eat real food again. He recognizes family members, and has the use of his hands and often even a sense of humor. That he lived was a miracle, that he has had improvements are many more. I keep him in my heart and ongoing prayers,as always. The goal is to get him off of the feeding tube, eating and drinking again, and reducing his seizures.

May 2013:

I am updating my official "Praying for a Miracle" blog post to reflect the almost year long journey that our family has been on as we gathered together to pray for a dying brother in Anchorage, Alaska on June 8, 2012 to wishing him and his wife, Godspeed as they now return....so many, many months later...to their home in Eagle River Alaska.

And while this continually updated blog post is sequentially backwards in time, it follows the miraculous journey we all shared in as our brother went from 'no chance of living' to 'he may remain in this coma for an indefinite amount of time', to 'well, he came out of the coma, but we have no way of knowing if he will have much brain function' to 'well, here he is...and he's got his own personality and everything!'

The only lasting effects so far...he still has to walk with a cane (he has two artificial knees, an artificial hip, and a titanium rod in his spine) but he had those before ;)

His medical memories as a doctor are fully intact (he is a brilliant and deeply caring medical doctor who was previously in family practice in Eagle River, Alaska) and his physical, mental condition almost fully restored in all ways. Such an amazing journey filled with so many experiences!

His wife continues to need a kidney transplant, however, so our prayers now focus on Rebecca Savikko, who needs a O+ kidney without or without high antibody titers. Please, please let us know if you are willing to donate a kidney or have a loved one who is able to do this and save her life.

Information for the transplantation program at Portland Oregon's Legacy Hospital, where the procedure would take place can be found here:





Update May 6, 2013:

My brother has left Portland, Oregon on a road trip via Alcan Hwy and Alaska State Ferry System for his home in Eagle River, Alaska. Our next brother down in age, is accompanying him while Doug's wife, Rebecca flies home ahead of their week and a half long trip... via road, ferry, then road again, trip home.

Updates April/May 2013

My brother and his wife are both doing well and hope to return to their Eagle River/Anchorage, Alaska home within the upcoming months.

March 2013 Updates:

My brother, Doug, his wife, Rebecca,
my dear friend (of 40 years) son, Kelly 

My brother, Douglas Savikko of Eagle River, Alaska has reached a pot of gold at the end of the miracles rainbow. He drove HIMSELF and his WIFE down to visit us and share a dinner this past Sunday.Doctors in Anchorage didn't think he would live. Doctors in Seattle knew he'd not only lived but survived being medevac'd to their hospital in his coma. Doctors in Portland, knew he'd come out of his coma in Seattle, and recognized me and smiled... and now realized that he'd lived, had at least some mental faculties, and had his trach tube removed within two months in this Portland specialty hospital. Eventually, he was released to a rehab facility in Hillsboro Oregon, he regained the use of legs and his strength and all other faculties.Released to go to a family home by December of 2012..he is himself in almost all ways! June 8th...rushed by ambulance with a severe case of the flu through November and then into December of 2012 to now....one blessing, one miracle, after another! Please read the continuing story below all of the updates for both himself, and his wife, Rebecca Savikko.



Please continue to pray for his wife, Rebecca who continues to need a kidney transplant..read below for Becky's story over the past 2 plus years.  She is now seeking to be on the transplant in Oregon, as well as Seattle, Washington.

My dear friend of 40 plus year's son: Kelly continues to recuperate from being severely injured while crossing a marked and flashing light intersection pedestrian crosswalk. Surviving extensive brain damage and being written off as not further improving at a large skilled nursed home in South Salem, his parents fought to have him released to a private neurological care home in Philomath. He is now making thumbs up signals for 'yes' and shaking his head for 'no'. A long and challenging struggle for Kelly, his loving family, and for the care givers in the new care home who believe in miracles and continuing work with him to get improvement in communication and other abilities.

My Mother: My mom is still alive, but now in her 8th year of advanced Alzheimer's. We pray only for her caregivers, my own family members of two brothers and two sister in laws who care for her every single physical need with the utmost love and respect for her condition. They feed her by hand, bathe her, dress her, and read "Little House on the Prairie" all of the books three full times now, and "Anne of Green Gables". She seems to enjoy the sound of their voices and to respond to them and their love. I am so grateful that they took over when my father passed away in August of 2010 and I could no longer care for her by myself since I could neither lift nor carry her. God Bless all Care Givers!




December 2012 Update: My brother, Douglas Savikko of Eagle River, Alaska has been blessed by a miracle. He has survived being in a coma for many, many months, on a ventilator for longer than average usage, had a trach/tracheostomy for several months, come out of his coma in his coma, learned to mouth words, then speak with a capped trach, then learned to speak, to use his arms, then his legs, and is now walking with a walker and being released to his daughter's home to rejoin his wife, who is staying now in Beaverton, Oregon.

He has most of, if not all of his faculties, and is working to regain memory gaps from the long confine, the horrendous seizures and brain inflammation or encephalitis. Doug is walking, talking, living, remembering proof that prayer and positive thinking, hard, hard work and the love and devotion of family, can work miracles. He will continue to live and recuperate their as his wife, Becky continues to seek her own medical care.

Please hold my sister-in-law, Becky in your thoughts and prayers..even just one quick positive affirmation for her life. Miracles do not always come in the shape and forms we hope for. While we continue to prayer for the steps leading to a kidney transplant, I also pray that she have the gift of gratitude for all that she has been blessed with in spite of life's horrible challenges. May the time she shares now with my brother and their family be blessed with love and joy.

I also continue to pray for my dear friend of over 40 year's son, Kelly, Hit by an elderly driver as he crossed a marked and flashing light pedestrian crosswalk, he suffered severe and untreatable head trauma. His family fought for his life and he has now survived since April 15, 2012's accident. Now, they fight for his release from the 'skilled' nursing center and all of their mishaps so that he can be placed in a private adult foster care home where the owner has been trained to deal with and care for neurological deficits. I pray that Kelly will regain the power of speech and be able to recognize his loved ones with attention and awareness.  For these things I do pray. Any blessing that is beyond any and all expectations is a miracle.

Back Stories and Updates from this original post begun last year: To see them in sequence with photos etc. click on the label 'praying for a miracle' or 'hearts and hands' at the very bottom of this post.


Updated on Sept 12, 2012

My brother, Douglas Savikko, spent all of June in Alaska Providence Hospital in Anchorage, Alaska fighting for his life, on a ventilator and with constant brain inflammation and seizures.

My brother, Douglas Savikko, spent all of July in Seattle, Washington with his life no longer in jeopardy, but his diagnosis and prognosis uncertain. But the seizures had had stopped and his deep, deep sedation was lifted slightly.

I moved to Seattle and lived in a hotel for an entire week, visiting his up to four times a day and also visiting his wife, Rebecca , who had flow down in a commercial jet as my brother was medevaced in a medical transport Lear jet. Rebecca, who is in end stage kidney failure and on the kidney transplant list, slipped on her very first day in Seattle, in the hospital, and broke her pelvis.

My brother has now spent all of the month of August and September at Vibra Medical Center, in Portland, Oregon. We used a medical transport from Seattle to Portland so as to maintain all of his oxygen assisted breathing through his tracheotomy, and keep him stable and free of the brain seizures.

My brother is moving to the Avamere Nursing Home and Rehab Center in Hillsboro, OR first week of October. He will regain his strength to sit up again, to learn to stand, and eventually to walk. He has all of his intellectual faculties just some big gaps (to be expected) in his memory after being in a coma and then, waking from the coma all of these 4 1/2 months.

His wife, my SIL, Becky, moved to Beaverton, Oregon to be nearer to him in Portland, and is staying with family, there. In Beaverton, she fell again and broke her pelvis. She now is healing from the broken hip, pelvis, dealing with osteoporosis and needing a kidney transplant.

My almost 97 (96 3/4) mother in law, Dorothy, has just been diagnosed with advanced metastasized bone cancer. We try to see her every single day for several hours each visit. She is doing as well as can be expected.

And of course, my own beloved mother, Nellie Grace, is now in her 8th year of advanced Alzheimer's. I send her love and healing grace every day that she may continue to live her life with the most amazing sense of spiritual presence in all of our lives,in spite of all of this terrible disease.




Updated on July 27, 2012:

Doug's Story:
I am asking for miracles for my brother, Douglas Savikko, of Eagle River Ak, as he continues his battle against a June 8th diagnosis of MRSA Pneumonia which precipitated an auto-immune response similar to ADEM which created a great deal of brain inflammation and continual seizures.

Follow his Crisis and his journey from critical care hospitalization at Alaska Providence Medical Center in Anchorage, Alaska and all of its Providence, Divine and Otherwise steps along the way to my Song of the Hills and an Air Flight Medevac to Seattle and then my continuing journey at his bedside in Anchorage back to Salem to Sisters to Seattle as I have prayed for One Miracle at a Time and faced Two Steps Forward, One Step Back. UPDATE: My brother is now in Oregon at the Vibra Specialty Hospital in Portland, OR. I am visiting him for a full day each week, taking breaks as I try to bring him out of his waking coma state back into full health and healing..the best that it may someday be. We have been told that the seizures most likely will have created brain trauma and will require lengthy hospitalization and a full year of hard, hard work on all of our parts to bring him back to us, the best we can!

I am also asking for positive thoughts and prayers for Doug's wife, my sister-in-law, Rebecca Savikko, also of Eagle River as she needs a miracle kidney donation of O+ with high antibodies titers for my sister-in-law, Rebecca Savikko, of Eagle River, Alaska. Besides needing the donation of a kidney, she flew south on a commercial flight to be with my brother, Doug..her husband, as he was medvac'ed from Anchorage to Seattle. Becky fell in the hospital, her first day there, and broke her hip and had to have surgery, a plate and three screws. Then she had another osteoporosis break in Portland and broke her pelvis. It has only compounded her challenges and all of ours as we continue to support her, as well.

I am also asking for prayers, for the 30 year old son of one of my best friends from college. The family has only lived a few towns over for all of these years, so I have watched Kelly as he grew up and became an independent young man. It was devastating to learn that he was hit by a car driven by an elderly man who saw the pedestrian crosswalk, saw the flashing lights but did not see Kelly, as he was walking across. Kelly sustained severe brain trauma as well as other serious damages. He has been in a coma since April 15, and we are praying for as much awareness and potential recovery of any kind that might allow him to be aware of his family and friends that surround and support him.

All at the the same, time, my own 96 1/2 year old mother-in-law, has been hospitalized and had surgery and has been in a deteriorating state. UPDATE: After 3 weeks in a nursing home, with our daily visits, encouragement and prayers, she has now returned to the five bed care home near us. I spend a minimum of 2 hours with her each day, doing my best to lift her spirits and make this stage of life as meaningful as possible.

And my own 87 year old mother, now entering her 8th year of Alzheimer's Disease, remains completely bedridden in our childhood home in Douglas (Island) Alaska. Our family continues to take care of her, completely by ourselves, as she has not been eligible for the limits resources available in the landlocked community of Juneau-Douglas. As in many places, even her being blind, bedridden, severely diabetic and having advanced Alzheimer's for years and years does not qualify her for hospice and make even a few visits of care available to us. Please prayer that those departments will open their hearts, hands, and minds to the reality of Alzheimer's Disease and the incredible drain and strain it puts on family members who must lift, carry, change, and feed their own mother all day long. Our hearts are hurting and our backs wracked with pain and strain as the strongest of my brothers has moved in with her, with his family, for 24 hour a day care as the rest of us come and go to offer help as we can.

And my own beloved 18 year old cat, Willow, is in the end stage of her own long and much loved life. Update on this: I lost my sweet girl..oh, such sadness! Willow: The Journey Across the Rainbow Bridge

All are not equal but all are equally as hard. Such are the challenges of all of our lives. Never the less, I share them here, to let you all know that you are not alone and that my heart goes out to all of you for your own challenges and struggles.

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The original post for this was dated May 12, 2012 and asked everyone who reads here to join me as we are Praying for a Miracle.
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Rebecca's Story:

Becky began to experience severe kidney failure in February of 2010. We were told she would not survive the 30 minute Coast Guard helicopter emergency airlift to the nearest hospital..but she did. She is an incredible fighter and prayers from around the world were said on her behalf. Becky was in a coma for almost two weeks. She underwent multiple blood transfusions, an extended coma, and many complications. But she did survive all of that, as well.

Becky undergoes kidney dialysis for 3 to 4 times a week, 4 to 5 hours a day and cannot live without it. Unfortunately, there is a limit to how long one can survive under these conditions and we are becoming more and more desperate to find her a kidney donation. Her chances might be slim...but seriously...that is what miracles are for.

It has taken all this time to even get her on the Kidney Transplant Database List and then she was removed from it last year. Prior to that she was turned down by hospitals in Portland, Oregon and Seattle, Washington because of the complications of her situation. Becky's blood type is O+, but because of the severity of the damage and the need for multiple blood transfusions resulting in sepsis, Becky's blood developed antibodies.

Statistically, it usually takes two to five years to find a suitable organ donor for someone, but because of these high antibodies the wait is more likely six to fifteen...and the deterioration usually takes effect and dialysis fails before you reach that point.

Her one, and only hope, is a perfect donor match with the O+ kidney of someone else with high antibodies titers. So, they are looking at one of those cross kidney chain donation swaps. Her son-in-law would donate a kidney to someone who desperately needs his O+ one, one of their relatives would then donate a kidney to someone who needs theirs..on and on..and hopefully only a four way swap until we get a match of O+ with high antibodies for Becky. Otherwise, we just plain need the perfect kidney to simply be donated to her, directly.

Please pray for this miracle..that we will find a perfect match or a chain of donors leading to that perfect match. We need a gateway, a pathway, and a prayer filled chain of miracles leading right to Rebecca (Becky) Savikko of Eagle River, Alaska.

Please help me, help her. The Internet has provided miracles such as these just by posting and re-posting of links on blogs and on Facebook. I am trying to catalyze the possibility of just such a chain of events by using my blog and my own facebook links.

In order for this to work, I need every single one of you who reads this, to just place this link at the bottom of a recent blog post on your own blog for me, or a separate post if you wanted to do that...anything at all will help..something that will make others come and read her story and be willing to pass the links on and on and on.

Please...it is seriously time for a miracle. Pray that we will find one and she will stay healthy long enough to face the surgery and recuperation from that surgery. Thank you so very, very much.

As you celebrate Mother's Day, or count all of your own blessings and things you are most grateful for...please just post even this link to this on your own blog, thank you! And you are welcome to copy and paste my own little prayer arch along with the link.

Praying for a Miracle

Please spread the word by posting this blog post link on your own blog...even just as the end of any blog post of your own...or link to it on Facebook!
  • And/or also use the photo above as the gadget photo and add the link to this post to link it
  • If you are on facebook, grab my link there and share it, as well.
  • Take a moment to leave a comment...my family members will no doubt be reading them
This will take a miracle to find a miracle! But I believe in the power of prayer, of thoughts and hearts open and united as one, and I especially believe in miracles!
Previous blog posts on Becky from 2010 when the kidney failure began:


light a candle, say a prayer....
."please help me, my family, and my brother Doug, by lighting a candle or saying a prayer for his wife, my sister-in-law, Becky, of Eagle River, Alaska...."


my candlelight vigil
..."Our vigil continues...but my dear sister-in-law, on her 10th day of a coma, is now at least off of the ventilator...."

When I committed to my light a candle, say a prayer....vigil, I did so with everything I had in me. A candle has spread its glow, as well as all of your prayers, across the thousands of miles from Douglas, Alaska to Key West, Florida, where she was flown by Coast Guard helicopter off of a vacation cruise ship.


miracles happen
..."After 12 days in a coma and 9 on a ventilator, my S-I-L, Becky, has now regained consciousness and is stable and doing amazingly well....."





NOTE: Please also pray for my dear friend's son, Kelly,   who was hit by a car on April 15, 2012 by an elderly man who admitted he saw the crosswalk, saw the flashing lights but since he didn't see anyone ..he kept on going. Kelly sustained severe head injuries and and has severe brain trauma. He has yet to come out of a coma and has been moved to a long term intensive care center. This is so heart breaking and needs one huge miracle, as well. Due to the nature of the car accident, and legal issues, I am keeping this post short, for now. Update:Kelly is considered to be out of the coma, many months later..but has extremely limited mental or physical abilities. It is beyond tragic to have 'accidents' of this kind happen to anyone. Imagine if this happened to someone you love. If you are in your 80's or your 90's and you are still driving..or a family member is..please think of Kelly Ball and hold him in your thoughts and prayers.

Making Prayer Pocket Pillows




Alaska Providence Medical Center

Please pray for my brother, Douglas Savikko, of Eagle River Alaska. This is Rebecca's husband. As a doctor, himself, he contracted severe bilateral pneumonia and was rushed to the ER in the early morning hours following his 60th birthday. He has been in the hospital for 3 weeks now...as of 6-30-12. He has a severe case of MRSA , the drug resistant staph infection and it is not responding to massive does of antibiotics and he has a mass in his brain that is causing brain seizures. Read about his critical condition and need for combine thoughts and prayers at linking title, above. I have flown from Oregon to Anchorage to be with him.

Shown above: my own backyard prayer arch with Rebecca Savikko, Eagle River Alaska written on one of the little prayer flag ribbons as I send this request and my own prayers out into the Universe.


Linking Blog Posts/Updates:

Praying for a Miracle
Crisis
Providence Alaska Medical Center
Providence, Divine and Otherwise
Song of the Hills and an Air Flight Medevac to Seattle
Salem to Sisters to Seattle
One Miracle at a Time
Two Steps Forward, One Step Back
Update 2012..many updates added to this last 2012 post
Final Update on Praying for a Miracle 2013


Michele Bilyeu blogs With Heart and Hands as she shares a quilting journey through her life in Salem, Oregon and Douglas, Alaska. Sharing thousands of links to Free Quilt and Quilt Block Patterns and encouraging others to join in her Liberated Quilting Challenge for the Alzheimer's Art Quilt Initiative (AAQI) Help us change the world, one little quilt at a time!

Jun 22, 2012

Crisis



Life takes unbelievable twists and turns sometimes. Things happen that are not anticipated nor ever expected....and suddenly, there you are... and you have to take the cards that you have been dealt, and deal with them.

On May 12th, I posted about my sister-in-law, Rebecca Savikko , married to my brother Dr. Douglas Savikko, of Eagle River, Alaska, and her need for the donation of an O+ positive kidney with high antibodies titers.

Ironically, it is now my brother Doug, and not my sister-in-law, Becky, who is in seriously critical condition in Providence Alaska Medical Center in Anchorage, Alaska.

My brother has spent most of his life having horrible things happen to him and being sick on and off most of the time because as a doctor he is continual contact with every germ, and viral agent that comes in to a doctor's office, or a hospital setting.

Our lives have been so filled with accidents, near death experiences, horrendous tragedies, that it becomes so surreal that as some point, we just say prayers and get through them all and get this survivor mentality that really seems to keep all of us going.

None the less, we have had one miracle after another, we have all survived near death experiences, we have all had terrible illnesses, diseases, and disorders, we have had bizarre accidents and we just keep on ...with faith, hope, sheer inner strength, and with gratitude when we have somehow survived them.

So, when my brother was rushed to the hospital two weeks ago because he couldn't breathe, I only added a sentence or two to my previous post asking for prayers for his wife, Becky, saying that my brother needed them, as well.

Well, now he really, really, really needs them.

Doug was diagnosed two weeks ago with bilateral pneumonia. As a doctor, himself, he had been treating himself with a variety of antibiotics but wasn't getting any better. The night after his 60th birthday on June 7th, he woke Becky and told her to call for paramedics as he couldn't breathe.

The ER doctor rushed him into acute critical care and he was placed on additional antibiotics, and IV drip etc. In spite of that, his fever spiked to 104 degrees, and they had a great deal of trouble even getting that down with medications, ice blankets etc.

They came to realize it was viral, not bacterial pneumonia, which of course can't be treated with antibiotics . You can only deal with life saving measures of treating the symptoms. He was placed on a ventilator, put into a deep coma with medications, given feeding and hydration tubes....and they have just waited for any signs of improvement.

There have not been any. He has been hanging in there and the plan was to attempt to wean him from the ventilator either yesterday or today, to see what happened....and to see if he could breath one his own, at all.

He can not. The prognosis is that he will die if he is taken off of the ventilator. So, they could not remove it. ( see updates on all of this at Alaska Providence Medical Center and my last one Providence, Diving and Otherwise)

The doctors took a second lung biopsy yesterday and the culture showed MRSA... pronounced
Mersa...a very serious bacteria infection, that is extremely challenging to treat. He has been on a ventilator for 14 days. That is the limit that you are supposed to be kept on what but he is too fragile to remove it so they are waiting until Monday or Tuesday and will attempt to remove it and do a tracheotomy. A ventilator goes into your mouth and down into your lungs, a tracheotomy goes into your throat and then down along with the feeding tube.

But no matter what, he is extremely critical and his life is in danger. According to his son, who is also a doctor, his dad is in far worse condition that his mom, Becky was in 2010 when she was not expected to live. But my nephew firmly believes that his father can still come out of this with time if they can just keep him going and he doesn't get any worse, AND if they can get him off of the vent and put in a trach tube.

Reality has hit our family and we are in different stages of both coping, and crisis. Two of Doug and Becky's three children are in Anchorage now, another is flying up, and my next younger brother (and therefore Doug's brother )is flying up to help the family in any way that he can.

I am here,
(Update: I flew up to Anchorage the next day: post titled Alaska Providence Medical Center)
and all I can do is to do what I always do. I send all of the positive thought, healing energies, and prayers as I know them to be, to my brother, to his showing any sign whatsoever of improvement, and to strengthen my sister-in-law, Becky and their grown children, spouses, and tiny grandchildren for whatever may lie ahead.

I still believe in miracles and I pray of course, for healing, for a pulling back of all symptoms and a complete regeneration, and return to health. If he survives having the ventilator being removed and the surgical insert of the tracheotomy, then he may face long term care.

Yesterday, to be honest, I was told by via a phone call from one of my sister-in-laws, that he would most likely die and I was devastated. (I found out later that this was a peak crisis day for several family members and everyone was so frightened that they truly had to face this huge, huge fear. But again, we have all rallied)

I have since rallied and my faith in possibilities and miraculous healings restored. For everyone's sake, I need to maintain that place and that space in order to hold it open form him to come back into this world and out of the one he is stuck in right now.

So, I am choosing to stay with the more hopeful diagnosis, after all 6 doctors said Becky would die in 2010 and she may be in continuing bad shape, but she is still alive and fighting for a kidney transplant!!!! It is what we do and I know several other extended family relations who have also been given dire predictions and not only survived comas but are doing quite well!

And no matter what happens, is happening, my sister-in-law, Becky, (see Praying for a Miracle) still needs dialysis three times a week, four hours a day or she, too, would not survive. Please hold her in your thoughts and prayers, that she can continue to do for herself under this intense pressure of what is happening to my brother, her husband.

Thank you for your kind thoughts, words, prayers, and best wishes in advance.

Michele


Linking posts; past and current

Latest Update on Praying for a Miracle
Praying for a Miracle
Two Steps Forward, one Step Back
Praying for a Miracle
Crisis
Providence Alaska Medical Center
Providence, Divine and Otherwise
Song of the Hills and an Air Flight Medevac to Seattle
Salem to Sisters to Seattle

Michele Bilyeu blogs With Heart and Hands as she shares a quilting journey through her life in Salem, Oregon and Douglas, Alaska. Sharing thousands of links to Free Quilt and Quilt Block Patterns and encouraging others to join in the Liberated Quilting Challenge and make or donate small art quilts to the Alzheimer's Art Quilt Initiative (AAQI) Help us change the world, one little quilt at a time!

May 17, 2012

Prayer Pocket Pillows



Our lives are filled with challenges, pain, and even great fear. But if we strive to maintain hope, and stay as positive as we can during hard times, we can also be amazed at the power of connection, of prayer, and the belief that miracles are right here around us... and just needing our heart's connection to them and to their manifestation.

I am reminded of those ever increasing challenges as I am Praying for a Miracle for my sister-in law, Rebecca Savikko in Eagle River, Alaska who needs the donation of an O+ positive kidney that has high antibodies titers. To have this type of blood type and therefore available kindey for donation would involve someone who has also had trauma, or infection, or many blood transfusions which they survived and became healthy again and are willing to donate one of their kidneys so Becky might have a chance at living without constant and eventually limiting kidney dialysis.



But I am also praying for my dear friend's son, Kelly Ball,
who as in an extremely serious accident on April 15th.

Kelly Ball, age 32, is fighting for his life after being hit by a car in a marked crosswalk with flashing lights in Corvallis, Oregon. He was simply crossing the walkway when a car driven by an elderly gentlemen who saw the crosswalk, saw the flashing lights, but said he did not see Kelly as he drove right threw and into Kelly throwing him many yards, breaking bones, injuring internal organs and causing severe brain trauma.

Kelly's mom, Patti, has been my friend for over 40 years since we lived across the hall from one another in college at OSU in Corvallis, Oregon. She is an amazing woman with a wonderful family and a life with challenges, just as so many of us have. We have been there for each other through so many of these challenges ...in both of our lives... and now we must simply face this new one. For even when we live apart from others, even if we only see them occasionally, there are these amazing heart strings of connection that energetically and spiritually connect each of us to those we care about.

This is the second severe accident her son has been in. He was also hit by a car when he was 12 years old and coming down a hill on his bicycle and a car failed to see him on his bike and hit him. That accident also put him into a coma, caused a stroke, and created lifelong epileptic seizures and weakness on one side of his body.

He came through that, relearned all that the accident took away from him got a job, an apartment, and now working at OSU, he was simply crossing a marked crosswalk and had this happen.

Kelly has been in a coma since April 15th. He has only moved a couple of toes and finally opened his eyes for the first time on Mother's Day...for his mother...which meant the world to her. He then went back into the coma state and has had no other responses except for the wiggling of a couple of toes last week. I have been praying for him, reading his Caring Bridge journal kept by his family on status, sending lots of love, and messages, and waiting for signs that he might first live through it, and secondly show any signs he might come out of the coma and then after that, we will just pray for a recovery and full healing of his traumatic brain injuries.

They were able to get him off of the respirator, he is breathing on his own but we need a healing for his brain and his body that will allow him to come back to his mother and father, a grandfather, two sister's and a young nephew...all who love him very, very much.

Like myself, his parents have lived challenging lives where they too, have become the care takers of parents with Alzheimer's Disease, they too have faced the challenges of children, and illnesses, and accidents and more. Patti has not only cared for both of her parents, in her own home for five years, she then cared for her mother-in-law and now her father-in-law, all while teaching full time and doing an amazing job of that.



Please join me as we simply lift up our spirits in common good and wish for healing for all and peaceful spirits and hope filled hearts as they find their ways through these challenges. Thank you for all of you who have taken the time to leave comments of support, send emails of encouragement and affirmed my belief in the powers of connection and manifestation.



Making My String Pieced Prayer Pocket Pillows
I write a message of love and hope and place those little messages in the pockets on the back. Like my prayer flags hanging on my garden arbor, they give physical connection to a spiritual realm where miracles are just waiting to be invited into our lives.

Praying for a Miracle

Jun 30, 2012

Alaska Providence Medical Center



I have flown up to Anchorage, Alaska to be with my family by the bedside vigil for my brother, Doug.

I received a phone call from Doug's wife, my sister-in-law Rebecca, telling me that my brother's condition was even more serious and more complicated than they had thought. A spinal tap led to another MRI, and the belief that the MRSA ( a drug resistant and very, very serious form of a staph infection) has spread through his blood supply, from his lungs to his brain.

I made plans and got a ticket on Alaska Airlines late that night, for the next day. By that next day, two of my brothers, and myself joined Becky and her three children, in a bedside vigil. Our only other brother, has stayed in Douglas, an island near Juneau, to care for our mother.

By that day, Thursday, the 29th, they decided the mass in his brain was not MRSA but an unknown infection. While at first, that seemed so much better, it is not. In fact, is far, far worse. MRSA can be continued to be treated by massive doses of the best antibiotics they have in attempt to overcome it. The infection can only be treated by the use of general steroids.

At this time, he is being treated with zovirax (anti-viral), mirram (antibiotic), diflucim (for possible yeast infection), propafol (a strong, strong sedative), vacomiacin (antibiotic for the MRSA), solonemedol (steroid), and dilantin (to control the seizures).

A group of doctors are working in tandem through the primary doctor and they all agree they have never seen anyone being given so high of a dose of all of these and not crashing from the sheer magnitude of drugs. To stop the continual brain seizures, they have literally given a dose of medication that would be enough for a very large elephant..far more than 5 times larger than that which they would normal use. Attempts to lower doses have resulted in increased seizing and therefore potential damage to his brain.

The prognosis is acutely serious, if not dire, but they will continue to monitor him in the acute critical care room and every means they have to evaluate, or treat a litany of symptoms and a pattern that is not even a know response in any of the years that they have dealt with any of them.

Providence Alaska Medical Center is Alaska's largest and best, state of the art, hospital. We wear masks, gowns, and gloves each time we enter his critical care unit room, and don a complete new set of each of them, every time we have to leave and re-enter the room in tandem with continually washing our own hands before leaving the unit and throughout the hospital. The photo is of myself, of course, next to my brother in his bed. Out of respect to him and his family, I am not, of course, showing him.

My brother continues to be in a deep, induced coma and is being treated with as many drugs in the highest doses that they knew he can stand without his crashing from the amounts he is being given and that is what can only be done.

The doctor is extremely compassionate, very honest with any, and all explanations. Doug's 30 year old son, is also a doctor based in Arizona, in his last year of an extensive/intensive program as a radiologist of the highest level, trained to use equipment that they only have a in a few major medical centers and he, of course, has been given full access to view all films etc and be a part of all medical information.

We are informed on a regular basis of any changes to the regime and we watch the many monitors in the room for changes of any kind. His high fever is now under control and he is breathing closer to the range they want but still attempting to control his own breathing against the machine..which should be impossible at this level of sedation that they have never, every used before.

The doctors are very honest in telling us that they have never, ever seen a case as challenging as this, nor a patient that has needed, and tolerated such massive does of medicines and sedatives. We have a conference table meeting, yesterday, with 9 of us, and the doctor could not have been any dearer, kinder, or more open.

Without his using the word 'miracle', that is really and truly, in the deepest sense of the word, what my brother needs.

Please continue to send positive thoughts and the continuing belief that all things are possible, miracles truly do happen, and if that is not meant to be, please send my brother's wife, and his three children and their spouses, the strength to bare whatever needs to be born.

Doug's wife, Becky, continues to travel to another center where she still needs to receive dialysis for three times a week at four hours a day. She is so heartbreaking dear as she simply stands by his bedside, holding his hand, rubbing his arm, for hours at a time, sending him such, deep, deep fountains of love.

Linking Posts:


Latest Update on Praying for a Miracle
Praying for a Miracle
Two Steps Forward, one Step Back
Praying for a Miracle
Crisis
Providence Alaska Medical Center
Providence, Divine and Otherwise

Michele Bilyeu blogs With Heart and Hands as she shares a quilting journey through her life in Salem, Oregon and Douglas, Alaska and all of her AAQI Quilting. Sharing thousands of links to Free Quilt and Quilt Block Patterns and encouraging others to join in the Liberated Quilting Challenge and make or donate small art quilts to the Alzheimer's Art Quilt Initiative (AAQI) Help us change the world, one little quilt at a time!

May 2, 2013

April Showers Bring May Flowers



Happiest of May Days to all of you! What a year and what a lovely and very busy Spring!

We are preparing for family to visit. My second brother down (I am the oldest and only girl of five offspring) is flying down from the Juneau area to accompany his older brother (my first brother down, I am still the oldest of five ;) and experience a brothers' roadtrip from Portland, Oregon to  Anchorage, Alaska.

Yes, it's really happening! My Praying for a Miracle  brother, Doug, not only survived his many months long coma and hospitals stays in three states and four hospitals to be fully recuperated and ready to travel home again, to Eagle River, Alaska.

His wife, whom I am still praying for a miracle, will fly up as she continues to need a kidney transplant and has to be near a major hospital or treatment center at all times for her three times a week for 4 hours a day kidney dialysis. So, unfortunately, no Alcan Highway road trip for her. This one is just for the guys, this time.

Oh, what a year! I flew to Anchorage on a moment's notice, after being told that my brother was almost certainly going to die. I stayed by his bedside for 9 days (along with many, many family members) until we knew he was going to survive a horrific case of flu that led to MRSA pneumonia, severe brain seizures and the need for many, many months of the deepest sedation doctors had ever, ever induced in a patient.

He survived medical jet transport to a hospital in Seattle, WA after his Alaskan doctors realized he needed a higher level of critical care and a full time neurologist and seizure experts.  He stayed there, while I stayed in a hotel for a week, in order to be by his bedside, as well as by his wife's as she fell on her very first day in Seattle, and broke her hip.

After my time with him, he finally got so tired of listening to my non-stop chatter, that it was far easier to rise up through the levels of his deep coma and open his eyes. His way of saying..enough already ;) though he did it with beautiful baby blues and a huge smile of recognition.

Still on a ventilator, he was moved by ambulance down to Portland, Oregon to be closer to his wife, now staying at their daughter's house after breaking her pelvis on the first day in Oregon! Needless to say, she has now been diagnosed with osteoporosis on top of every thing else!

Two months in his specialty hospital in Portland, we got his trach removed and himself into a specialty rehabilitation facility where he improved in leaps and bounds as I drove from Salem to Portland several times a week, picking up Becky and bringing her to see Doug, too.

What a long six months until he could leave there and be at his daughter's, as well. And now...they are going home!!! At least until Becky gets a kidney and then back down they will come!

Thank you all for your support, comments and prayers during this past year. It meant the world to all of us!

Happiest of May Days! Our new beginnings start now.

And check out my small format art quilt donated to Alzheimer's Art Quilt Initiative (AAQI and awaiting assignment for sale at a later date. 


For all of those I love...

I Will Remember You













Michele Bilyeu blogs With Heart and Hands as she shares a quilting journey through her life in Salem, Oregon and Douglas, Alaska, as she sews, quilts, and creates small format art quilts, prayer flags, and comfort  quilts for a variety of charitable programs. Sharing thousands of links to Free Quilt and Quilt Block Patterns and encouraging others to join in her Liberated Quilting Challenge and make or donate small art quilts to the Alzheimer's Art Quilt Initiative (AAQI) Help us change the world, one little quilt at a time!

Jul 27, 2012

Two Steps Forward, One Step Back



People always say "No news is good news." But often it is exactly the opposite. Sometimes, you don't hear from others because it is taking every minute they have just to deal with, and cope with their challenging lives.

My brother had a huge setback as soon as I left Seattle...after my full week of staying there, and being with him as much as 6 hours in a day. And as you can imagine...I did not sit by quietly. I did everything I knew how to do, spiritually, energetically, with healing touch, and constant talk to pull, pull, pull him out of the coma and back to us. I got him to look me in the eyes, to nod his head 'yes' or 'no' to some, but not all questions and I most of all...I got him to smile. Over and over his stared into my heart and smiled. And I loved it. But as my week came to an end, I had to return to my own home in Salem, praying he could just hold on to his progress and maintain his steadily improving state of health. It did not last. And it breaks my heart that it did not.

First he had a huge seizure the very next day. It took the doctors a full 45 minutes to get it to stop. That is not good. Not good at all. Previous to that he had not had a single seizure in a week and a half. Then day before yesterday, he had 27 seizures in one single 24 hour period. The doctors at Harborview Medical Center, in Seattle, do not understand why this is all happening, but are doing every thing they know how to do.

I cannot help but wish I was still up there, still encouraging him, still talking to him and sending him positive healing energies and prayers, but I needed to return to help with my almost 97 yer old MIL who was also taken to the hospital and had to undergo surgery and then a battle to find a single care home that would accept her. Her current one said she was "too ill" for them, the next one said "she was not ill enough to require 'skilled' nursing care.

Finally, Providence Benedictine in Mt. Angel OR accepted her and she had several more days of IV drips and physical therapy in order to be able to use her legs and hands a bit, and is doing well there, and getting stronger. Our goal is to get her strong enough that it will only take one person to move her in and out of bed, so that her small adult care home will accept her back without having to hire a second helper just for her, at our expense. As much as she may complain there, she considers it her home and we need her healthy and strong in order to be able to return!

It is all so challenging, and it is just one thing after another after another!

Please continue to keep my brother, Douglas Savikko, of Eagle River, Alaska..and his wife, Rebecca Savikko, who not only needs the donation of an O+ kidney with high antibodies titers, but fell and broke her hip, in the hospital, while walking with a nurse, and has since had hip surgery..a plate and three screws....in your thoughts and prayers. We are hoping to move Becky south to Portland, where she can live with her oldest daughter and her family as we go through so many challenges with Doug. And we will then take turns, driving her up to Seattle to see her husband, my brother, Doug, on weekends when she is not having dialysis, herself.

Please pray or send positive thoughts to ALL of the members of my entire family. We continue to care for our 86 almost 87 year old mother in our childhood home on Douglas Island, near Juneau, Alaska. Now, in her 7th year of Alzheimer's, I was expected in early August to return 'home' and give my brothers and sisters-in-law a break by being the 24 hr. 'live-in' care giver. I was placed in a horrible position of prioritizing crises, and since 2 brothers and one super hard working sister-in-law, live in the area and can continue to help out so that the current brother and his family, who moved in with my mom could take a much needed, and deserved vacation to see the wife's parents in Fairbanks. It is all so challenging...for ALL of us. So many of us, and our families are in this dramatic sandwich generation ...only now it's cross directionally....up, down, and sideways....in the sandwich!!!

Thank you and bless you for your comments and prayers. This post will remain as the update site and I will get a badge over on the side bar for connection with it under "Praying for a Miracle along with the other posts.

Thank so much!

PS
I will be posting on other things, for my sake, and my readers sake today, and tomorrow but keeping all of my thoughts and prayers with so many that I love as I do so, trust me!


photo:
Rebecca and Doug, at my parents home, Douglas Island, Alaska 2005.

Latest Update on Praying for a Miracle
Praying for a Miracle
Crisis
Providence Alaska Medical Center
Providence, Divine and Otherwise
Song of the Hills and an Air Flight Medevac to Seattle
Salem to Sisters to Seattle
One Miracle at a Time
Two Steps Forward, One Step Back

Michele Bilyeu blogs With Heart and Hands as she shares a quilting journey through her life in Salem, Oregon and Douglas, Alaska and all of her AAQI Quilting. Sharing thousands of links to Free Quilt and Quilt Block Patterns and encouraging others to join in the Liberated Quilting Challenge and make or donate small art quilts to the Alzheimer's Art Quilt Initiative (AAQI) Help us change the world, one little quilt at a time!